We are an organization founded by parents of children with rare forms of epilepsy and autism caused by a change in the SCN2A gene. "Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders (SRD) affect the entire family. Our team of leaders strive every day and in every way to fulfill our mission to accelerate research, build community, and advocate to improve the lives of ALL those affected by SCN2A-related disorders around the world. We believe that our core values of urgency, integrity, collaboration, and inclusion will lead to the fulfillment of our vision of a world with effective treatments and cures for ALL SRDs.
Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world. Our VISION is a world with effective treatments and cures for all SCN2A-related disorders. Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION. Please stop by T139 to learn about our grant programs and find ways to collaborate with us to improve the lives of those with SCN2A-related disorders around the world.