Hope for HIE is the premiere global patient advocacy and support organization improving the lives of children and families facing neonatal and pediatric acquired Hypoxic Ischemic Encephalopathy, one the leading causes of infant mortality and morbidity, and the top structural cause of neonatal seizures, Infantile Spasms and other rare and aggressive types of epilepsy. Hope for HIE provides comprehensive support programs and services for families and connects over 8,500 worldwide. Families have access to social work, child life services and peer support for whatever they may be facing. Hope for HIE's advocacy focuses on advancing research to both prevent HIE and improve the quality of life for children and families impacted. It also focuses on decreasting the inequity in support, research and advocacy for the HIE community across neonatal, pediatric and adult health, community and educational care settings.
Hope for HIE is the premiere global patient advocacy and support organization improving the lives of children and families facing neonatal and pediatric acquired Hypoxic Ischemic Encephalopathy, one the leading causes of infant mortality and morbidity, and the top structural cause of neonatal seizures, Infantile Spasms and other rare and aggressive types of epilepsy.