The International SCN8A Alliance works to empower and support those impacted by SCN8A and foster collaboration with families, researchers, clinicians, organizations and industry with the common goal of understanding, appropriately treating and curing the full spectrum of SCN8A disorders.
We envision a world where SCN8A is cured, prevented or effectively managed to maximize the highest quality of life of every individual affected by SCN8A.
The International SCN8A Alliance collaborates with stakeholders to expand the understanding of SCN8A, find better treatments & improve outcomes. Learn about our work to publish the 1st global consensus guidelines on diagnosis, phenotypes treatments & prognosis of SCN8A, extensive support & education for families, advancing research, longitudinal Registry and alliance w/ global SCN8A patient organizations to rapidly and collaboratively advance cures. We welcome new partners and collaborations.