Many DEE families have children who are incredibly medically complex and frequently confronting a range of medical issues that are hard to diagnose and treat. They are constantly searching for answers to help better explain and ameliorate the many challenges their children are facing. DEE-P provides a one-stop hub for families to access high quality resources on a wide mix of medical, care and research topics to help improve care and outcomes for those living with DEEs.
DEE-P brings together 40+ rare epilepsy organizations alongside researchers, clinicians and industry partners to improve the lives and outcomes of those most severely affected by DEEs via webinars, resources & research. Clinicians - refer DEE families to these comprehensive, reliable resources. Researchers - let’s partner to fill the gaps. Patient groups - join & share key resources with your community. Industry - sponsor our innovative, targeted work serving the unique needs of DEE families.